Your voice helps us improve our care.
We've partnered with Care Opinion, an independent platform where patients, families, and carers can share their experiences of the care they've received at the Hospice. Every story helps us see our care through your eyes.
Why your feedback matters
Honest feedback from the people we care for is the best way to improve.
It's independent
Care Opinion is not run by the Hospice. It's a safe, impartial space where your voice is heard on your terms.
It shapes our care
Every story is read by our team. Your feedback directly informs how we improve our services for future patients and families.
It reassures others
Families facing a Hospice referral often look for real experiences. Your story could be the reassurance someone needs.
Sharing a story takes just a few minutes.
Frequently Asked Questions
Care Opinion FAQ's
When you post your story on Care Opinion, they publish it on their site if they can.
Then they share it with people in many different organisations working to make health and care services better.
They don't share your personal details, like your email address or postcode, with anyone else, unless there is a serious risk of harm to you or others.
You can withdraw your story from Care Opinion at any time. If they have already shared it with other people, they may have kept a copy.
Care Opinion CIC, are non-profit social enterprise.
You can find them here:
53 Mowbray Street, Sheffield S3 8EN
Telephone: 0114 281 6256
Email: [email protected]
Their data protection officer is Sarah Ashurst.
Care Opinion is a registered data controller (ICO registration ZA499495).
Care Opinion’s mission is to provide an online platform so that people can share honest feedback easily and without fear, stories are directed to wherever they can help make a difference, and everyone can see how and where services are listening and changing in response.
They do this in a way which allows many people to read and learn from your feedback, but at the same time protects your privacy.
The lawful basis for their data processing is your consent. They only collect feedback from you if you agree to share it with us for this purpose. You can withdraw your consent from them to share your feedback at any time.
They do not use the information you share with them to make any decisions about you or create any automated profile or score about you.
When you share your story on Care Opinion they for information about your story, and about you.
Here is a list of the information they collect from you, and why.
Your story: they collect your story so we can publish it on our website. They hope this will help people in many places learn from your experience, whether it was good or bad.
The health/care services you used: they collect the services you used so that we can let staff in those services know about your story. Staff may post a response to your story.
What you felt was good or could be improved, and how you felt: they collect this to help summarise your story, and also to make it easier for people to find your story on Care Opinion.
Your email address: they collect your email address so we can communicate with you about your story. For example, they will email you to let you know when your story is published, when you receive a response, or when your story leads to a change.
Your postcode: they collect your postcode so that they can direct your feedback to the health/care organisations which are responsible for making sure there is safe and good quality care in your area. For example, in England this would include clinical commissioning groups, and in Scotland it would include health and social care partnerships.
Your age group: they collect your age group (adult, young person, child) to help them understand who is using our service.
Your IP address: they collect your computer’s IP address to help us prevent or detect possible abuse of our web site.
After you share your story, you can also give them extra information about yourself if you want to. You don’t have to give them this information.
The extra information is:
- Your gender
- The year you were born
- Your ethnic group
- Whether you are limited by a health condition
This information helps them understand more about how different groups of people use Care Opinion. The questions they ask are the same questions used by NHS England in the “NHS friends and family test”.
As you use Care Opinion, if you are logged in they collect other information about how you use the site:
Stories you have looked at: they collect this to provide you with your recent reading history.
Stories you have marked as “similar experiences”: they collect this to help us show which experiences are most common.
Responses you post to your story: they collect responses to help people resolve issues and communicate effectively with the services used.
Because the purpose of Care Opinion is to direct stories to wherever they can help make a difference, after they moderate your story they make it public and share it as widely as we can.
But, to protect your privacy, they don’t share information about who you are.
Information they make public
- Your story
- The health/care services you used
- What you felt was good or could be improved, and how you felt
- Your age group
- Your responses
They share this information with everyone.
Sometimes they may share your story with the service providers it is about before we publish it on Care Opinion.
Information they keep private
- Your email address
- Your postcode
- Your IP address
- Stories you have read
- Stories you have marked as similar experiences
They don’t share this information with anyone.
But if they believe that there is an immediate risk of serious harm or loss of life to you, or to someone else, they may share your private information with the health/care service caring for you, or with the police.
Information they share only as statistics
If you give them extra personal information (decade of birth, gender, ethnicity, long-term illness), they do not share this about you as an individual.
They do provide reports to health/care organisations which include this information as statistics. For example, their reports might say “50% of people using Care Opinion are over 55 years old”. Their reports never include your individual personal information, and we never show your individual personal information with your story.
After they publish your story (along with the services it is about), they share it in different ways so that it can be read and used by many people.
Some of the ways they might share your story are:
- They publish it on our website for anyone to read
- They send emails to staff who need to see it
- They post a link to your story on social media such as Facebook and Twitter
- They include your story in reports for health/care organisations
- They share your story with health/care organisations and researchers via their data feed (API)
- They share your story with health/care students training to become professionals
- If your story is about an NHS service in England, they will also send it to the NHS Choices website.
Because your story is online, like any web page it will be seen by search engines like Google. This means people can search for your story.
In line with their mission they share your story as widely as we can, without sharing your private information, because they want your story to make a difference.
Because people can learn from your story even many years after you shared it, they keep the information you share with us indefinitely.
If they have to make changes to your story before they can publish it, they keep the original version you sent them for 6 months after publication, and then delete it.
Care Opinion hold your information only with your consent. You can withdraw your consent to sharing some or all of your information at any time.
You have the right to be informed
This privacy notice provides information about who they are, the information they collect, what they do with it, and who can see it.
When they ask you for information they provide a summary privacy notice and a link to this longer privacy notice.
You have the right of access
You can see the information you have shared with them by logging into Care Opinion using your email address and password.
You have the right to correct your information
When you log into Care Opinion you can correct any personal information you have shared with them.
You have the right to a copy of your data
When you log into Care Opinion, you can request a download of all the stories and responses you have shared with us.
You have the right to withdraw your story
You can withdraw any story you have shared with them, whether they have published it or not. You need to log into Care Opinion to do this. Please note that if you withdraw a story, they will not re-publish it.
You have the right to remove all your information
You can ask Care Opinion to delete all the information you have shared with them. If you do this they will delete your Care Opinion account, all your stories and responses, and any other information they hold.
Please note that once your information is deleted, we cannot get it back.
If your stories and responses have already been published, they may have been read and saved by many different people. It is not possible to delete copies of your story or responses which have been saved by other people on their own computers.
You have the right to complain
If you have any concerns about how Care Opinion hold and share the information you have given them, please let them know. If you are unhappy with their actions, you can complain to them.